Here's something you might be interested in.
Damian and Spencer met seven years ago while working at In-n-Out. Spencer played in bands during his freetime while Damian worked toward his bachelor’s degree at UCSD. They became good friends as they both progressed toward their goals until three years ago, when Damian had to move home to Coachella Valley due to a mysterious deterioration in his hips. He was two classes away from gradating.
A few years of testing later, Damian was diagnosed with dyskeratosis congenital. Also called Zinsser-Cole-Engman syndrome, DKC is a rare progressive congenital disorder that in some ways resembles premature aging (similar to progeria). The disease mainly affects the integumentary system, the organ system that protects the body from damage, with a major consequence being anomalies of the bone marrow.
Damain will be moving to Minnesota to receive a bone marrow transplant in May with the hopes of slowing down the progression of the disease.
In order to help offset the cost of the highly specialized procedure as well as expenses for travel, room, and board for Damian and his mother during the 100 days of recovery, Spencer is throwing a benefit tonight - Thursday, March 28 - at The Propagandist (Gaslamp - 835 5th Avenue) with live music by Buddy Banter, Grand Tarantula, and Cuckoo Chaos.
An art show and Be The Match Foundation donor testing starts at 7 p.m.
You can also donate to Damian’s Indie Go Go fund.
http://www.youtube.com/watch?v=E3Q1zvPq2dI&feature=youtu.be
Damian and Spencer met seven years ago while working at In-n-Out. Spencer played in bands during his freetime while Damian worked toward his bachelor’s degree at UCSD. They became good friends as they both progressed toward their goals until three years ago, when Damian had to move home to Coachella Valley due to a mysterious deterioration in his hips. He was two classes away from gradating.
A few years of testing later, Damian was diagnosed with dyskeratosis congenital. Also called Zinsser-Cole-Engman syndrome, DKC is a rare progressive congenital disorder that in some ways resembles premature aging (similar to progeria). The disease mainly affects the integumentary system, the organ system that protects the body from damage, with a major consequence being anomalies of the bone marrow.
Damain will be moving to Minnesota to receive a bone marrow transplant in May with the hopes of slowing down the progression of the disease.
In order to help offset the cost of the highly specialized procedure as well as expenses for travel, room, and board for Damian and his mother during the 100 days of recovery, Spencer is throwing a benefit tonight - Thursday, March 28 - at The Propagandist (Gaslamp - 835 5th Avenue) with live music by Buddy Banter, Grand Tarantula, and Cuckoo Chaos.
An art show and Be The Match Foundation donor testing starts at 7 p.m.
You can also donate to Damian’s Indie Go Go fund.
http://www.youtube.com/watch?v=E3Q1zvPq2dI&feature=youtu.be